Hi, Marcia here again with an update.
Anne reports that Gary felt pretty good last night. They are getting used to the new routine of administering the antibiotics with a gravity drip (bag hung from pole) through his port for 30 minutes before starting his TPN. When they left the doctor’s office they were under the impression that the liquid would be added to the TPN. One has to be rather flexible and resilient if one is going to go through something like this.
In additional to the physical difficulties that Gary is putting up with, the Olsons seem to be dealing, on nearly a daily basis, with a certain amount of rigmarole. Coordination between doctors, medical professionals, Home Healthcare, advice nurses, dieticians, and agencies of one kind or another often requires multiple phone calls. Even the task up obtaining extra sponges for Gary’s drain became complicated. Who exactly is supposed to provide those? What if you need more than the 67.375 that each patient is statistically predetermined to require? And, when does it cease to be frustrating and begin to be almost, but note quite, laughable?
Reading the day-to-day trials of just “trying to eat” profoundly makes digestion a more critical aspect than most of us consider as we “shovel food in” whether we’re hungry or not!
I’m sorry that every day is such a NEW adventure and that you don’t get TWO Good days together!
Take care and hang in there!
Sort of disconcerting when the left hand doesn’t know what the right hand is providing, huh? Would some kind of “he said, she said” spread sheet help?! We all send hopes for better tomorrows!
Gary you are amazing as is Anne. Hope it’s all up from here; glad about the good cat scan news!